At Penn Medicine, your care goes beyond medical treatments. We make sure you and your family receive all the services you need. We’re here to help you know what to do and what to expect.
We also seek to help a wide range of people with neuroendocrine tumors (NETs), not just those receiving care with our program. We do so through a networking group and events such as patient education conferences and community outreach events.
Nurse Navigator and Nurse Coordinator for Neuroendocrine Tumors
Throughout your journey, we have dedicated nurses to help guide you from diagnosis to treatment to long-term care:
These team members can help set up appointments, secure existing medical records and assist with other logistical needs. They can also arrange patient and family support that you may need, such as nutritional consultations, genetic counseling or social work assistance.
If you have medical questions, you can reach out to your care team directly. In particular, nurses are always ready to help with any concerns about symptoms or treatment side effects.
Education and Networking Group for Neuroendocrine Tumors
On the fourth Thursday of every month, we run a no-cost, virtual neuroendocrine tumor support group for people living with NETs and their caregivers. At this Educational and Networking Group, participants get a chance to share their experiences. A nurse navigator, social worker and dietitian from Penn are also available to answer questions.
Typically, the meetings last from 1 to 3 pm EST, and include a one-hour educational presentation followed by a one-hour networking session. Participants choose future presentation topics, with Penn neuroendocrine experts invited to speak.
Learn more about the Virtual Networking Group
To register, please visit the online calendar at PennMedicine.org/CancerSupportGroups. All are invited to join, you don’t need to receive your care at Penn to join.
To register or reach out with questions, contact nurse navigator Diann Boyd, BSN, RN, at 215-614-1863 or via email at Diann.Boyd@pennmedicine.upenn.edu.
Annual Focus on Neuroendocrine Tumors Conference
Since 2012, the Penn Neuroendocrine Tumor program has held an annual conference for the public with NET experts from Penn Medicine and from across the country
Join us in 2023: The Patient Experience: Abramson Cancer Center’s 12th Annual Focus on Neuroendocrine Tumors
February 23, 2023 | In-person and Virtual options
Join Penn’s expert physicians to bring a patient perspective to key topics in neuroendocrine tumor care. You won’t want to miss these firsthand accounts:
- GEPNET Patient Experience: After liver directed therapy
- PRRT/Azedra Patient Experience
- Patient Experience Lung Surgery
- Endoscopic Mucosal Resection of GI NET Patient Experience
Register now to attend in person at the Hilton Philadelphia City Avenue or online from wherever you are most comfortable.
View meeting agenda and register at: PennMedicine.org/Abramson/NETS2023.
Run for the Stripes: Fundraiser for Neuroendocrine Tumor Research
In 2012, Jan Eisner, a woman receiving gastrointestinal NET care at our program, started a fundraiser for neuroendocrine tumors. The 5K walk and one-mile run quickly turned into an annual event, with the Abramson Cancer Center as a co-sponsor.
In recent years, the event has drawn hundreds of participants and raised tens of thousands of dollars for NET research at Penn Medicine. During the COVID-19 pandemic, it added an option for virtual participation.
Take action:
- Find out more about the nonprofit Run for the Stripes and register to join the November 22, 2022 event!
Request an Appointment
To make an appointment, please call 800-789-7366 or request a callback.